Join Rare Disease Day as a company

Thank you for your interest in raising awareness for Rare Disease Day!

Taking place every year on the last day of February, Rare Disease Day is a global movement which aims to promote equity in social opportunities, healthcare, and access to diagnosis and therapies for individuals living with rare diseases. This initiative brings together a worldwide community, including patients, families, patient organisations, healthcare professionals, industry leaders, institutions, and policymakers to raise awareness. The coordination of Rare Disease Day is a collaborative effort between EURORDIS – Rare Diseases Europe and 72 National Alliances partners worldwide.

While the main objective of the campaign is to strive for equity, each national alliance may choose to focus on specific aspects. For example, one alliance may emphasise improving access to treatment, while another might spotlight social inequalities. Regardless of the chosen focus, these national alliances greatly benefit from your support in raising awareness to execute an effective and coordinated national campaign.

Webinar: Rare Disease Day 2026 – Concept Introduction

Join us at 15:00 CET on 21 July for a preview of what is in the works for Rare Disease Day 2026!

The session will begin with an overview of key insights from last year’s campaign, highlighting both strengths and opportunities for improvement, before presenting the concept for next year. Although campaign materials are still in development (set to launch in November), this session will provide an early preview of the campaign’s tone and strategic direction.

We will conclude with a Q&A, allowing ample opportunity to align on how to support and amplify campaign actions in the year ahead.

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